Tuesday 17 July 2012

All in my Head!?

this is a controversial one!!!

There has been much debate over the years about how to define ME and CFS and every other illness seen in the world without specific easily diagnosed symptoms and definitive recognised similarities between patients.
Anyone who says that ME is all in the mind is mistaken, there are real physical symptoms. Just deciding one day to get out of bed and find a part-time job, to encourage a better awareness and greater strength is NOT going to heal. Choosing to start jogging or start a small business working nine to five from home, is NOT going to heal.
ME has exhaustion, mind, body and the soul too. Cognitive exhaustion, physical exhaustion and spiritual exhaustion.
Finding a new place of strength and reaching for recovery starts with acceptance, pragmatic awareness of your situation and starting to cope with the everyday trials of not having as much energy as those around you. Battling with friends and family who don't understand this is mindfully and spiritually debilitating. So where does this strength come from if the battle continues?
I found it by finding my own personal space and respecting it; by learning about me with as little negative outside energy as possible. Choosing the positivity inside of me and rejecting the negative energy was the first step. 
I found the positivity in books, in websites, in specialists and mentors, in carefully chosen friends and family who did understand, who were supportive and who didn't invade my soul with negativity every time they invaded our personal space.
By finding a spiritual and mindful place which encouraged healing I found the right place for physical healing to begin.
Physiologically all ME patients have so many symptoms, all of which can be given names- from Generalised Anxiety Disorder, to Psoriasis; from Pelvic Misalignment, to Repetitive Strain Injury. All of these are symptoms of ME. If I went through my body and found every niggle and gave it a name, I would have a list twice as long as my arm. I refuse to go there. It just causes more anxiety- treatments can cause secondary symptoms and more diagnoses, only causing a cycle of dire proportions, and most definitely encouraging a Generalised Anxiety! 
My one symptom which has had a diagnosis, and needed treatment was the seizures- diagnosed as Epilepsy(is this a separate thing, or part of the ME? all I do know is that it is part of me, so they must be connected somehow). I take medication for this. I don't like it, but I take it every day, twice daily and do not miss. Maybe one day we will realise that it was a symptom of the ME, maybe just a foible in my body, caused by a physical injury which will last a lifetime. My GP will tell you that I have more symptoms, he has a whole list of them! I just don't take note of them, am aware of niggles, but by paying them less attention and giving my body general respect and awareness I find a more calm and relaxed attitude, mindfully and physically.
With this calmer, more peaceful mind my body can find a physiological release and physical wellness and whole healing. ME is in the mind and body, every illness is in the mind and body, we are mind and body and we are whole, the two cannot be separated. 

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